Hello,
My name is Kim, I live in Maine and I am participating in a walkathon to help raise money for a cure for Tuberous Sclerosis Complex in June 2007. This is near and dear to my heart as my daughter and myself have the disorder. I haven't known about TSC very long, as I wasn't diagnosed until my daughter, Meagen started to have seizures and through tests we were diagnosed with this genetic disorder. We both have undergone surgeries and other affects of the disorder since then. Research and getting the word out about this disorder is going to help to find a cure. For more information please go to www.tsalliance.org
Thanks for reading a little of my story- please read my forum topic -It tells a little more about TSC and my story.
Kim
34 w/TSC mom to my little red headed angel Meagen 4 w/TSC
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